Advertisement
Brief Report| Volume 23, ISSUE 11, P813-816, November 2017

Implementation of Real-Time Assessment of Patient-Reported Outcomes in a Heart Failure Clinic: A Feasibility Study

      Abstract

      Background

      Patient-reported outcomes (PROs) quantify, from patients' perspectives, their symptoms, function, and quality of life. Our aim was to determine the feasibility of integrating PRO capture into routine clinical practice at a large heart failure (HF) clinic.

      Methods

      We examined the practicality of PRO completion at the time of clinic visit, the time required to complete the selected instruments, the completion rate, and the feasibility of immediate PRO scoring and integration of the results into the electronic health record (EHR). We deployed a computer program to capture PROs (Kansas City Cardiomyopathy Questionnaire, Patient-Reported Outcomes Measurement Information System) on a portable computer platform at the time of a clinic visit. An automated algorithm identified patients scheduled for appointments at the HF clinic at registration, provided a portable tablet computer with which to complete the appropriate PRO instruments and then scored and immediately integrated the results in the patient's EHR.

      Results

      In a 12-month period, 862 unique patients completed 1,320 PRO assessments. The mean age of this cohort was 60.1 ± 16.3 years and 66% were male. The average time for PRO assessment was 6.7 minutes and the completion rate among eligible patients was 58%, with 91% of started assessments completed in full.

      Conclusions

      These preliminary data support the feasibility of serial PRO assessment with real-time integration into the EHR in a large outpatient population of patients with HF. We identified critical steps that should enhance adoption of this approach by clinicians and render PRO results meaningful and actionable in routine clinical care.

      Key Words

      To read this article in full you will need to make a payment

      Purchase one-time access:

      Academic & Personal: 24 hour online accessCorporate R&D Professionals: 24 hour online access
      One-time access price info
      • For academic or personal research use, select 'Academic and Personal'
      • For corporate R&D use, select 'Corporate R&D Professionals'

      Subscribe:

      Subscribe to Journal of Cardiac Failure
      Already a print subscriber? Claim online access
      Already an online subscriber? Sign in
      Institutional Access: Sign in to ScienceDirect

      References

        • Lewis E.F.
        • Johnson P.A.
        • Johnson W.
        • Collins C.
        • Griffin L.
        • Stevenson L.W.
        Preferences for quality of life or survival expressed by patients with heart failure.
        J Heart Lung Transplant. 2001; 20: 1016-1024
        • Luther S.A.
        • McCullough P.A.
        • Havranek E.P.
        • Rumsfeld J.S.
        • Jones P.G.
        • Heidenreich P.A.
        • et al.
        The relationship between B-type natriuretic peptide and health status in patients with heart failure.
        J Card Fail. 2005; 11: 414-421
        • Green C.P.
        • Porter C.B.
        • Bresnahan D.R.
        • Spertus J.A.
        Development and evaluation of the Kansas City Cardiomyopathy Questionnaire: a new health status measure for heart failure.
        J Am Coll Cardiol. 2000; 35: 1245-1255
        • Wilson I.B.
        • Cleary P.D.
        Linking clinical variables with health-related quality of life. A conceptual model of patient outcomes.
        JAMA. 1995; 273: 59-65
        • Arnold S.V.
        • Grodzinsky A.
        • Gosch K.L.
        • Kosiborod M.
        • Jones P.G.
        • Breeding T.
        • et al.
        Predictors of physician under-recognition of angina in outpatients with stable coronary artery disease.
        Circ Cardiovasc Qual Outcomes. 2016; 9: 554-559
        • Shafiq A.
        • Arnold S.V.
        • Gosch K.
        • Kureshi F.
        • Breeding T.
        • Jones P.G.
        • et al.
        Patient and physician discordance in reporting symptoms of angina among stable coronary artery disease patients: insights from the Angina Prevalence and Provider Evaluation of Angina Relief (APPEAR) study.
        Am Heart J. 2016; 175: 94-100
        • Narayan M.
        • Jones J.
        • Portalupi L.B.
        • McIlvennan C.K.
        • Matlock D.D.
        • Allen L.A.
        Patient perspectives on communication of individualized survival estimates in heart failure.
        J Card Fail. 2017; 23: 272-277
        • Rumsfeld J.S.
        • Alexander K.P.
        • Goff Jr, D.C.
        • Graham M.M.
        • Ho P.M.
        • Masoudi F.A.
        • et al.
        Cardiovascular health: the importance of measuring patient-reported health status: a scientific statement from the American Heart Association.
        Circulation. 2013; 127: 2233-2249
        • Spertus J.A.
        • Jones P.G.
        Development and validation of a short version of the Kansas City Cardiomyopathy Questionnaire.
        Circ Cardiovasc Qual Outcomes. 2015; 8: 469-476
        • Garin O.
        • Herdman M.
        • Vilagut G.
        • Ferrer M.
        • Ribera A.
        • Rajmil L.
        • et al.
        Assessing health-related quality of life in patients with heart failure: a systematic, standardized comparison of available measures.
        Heart Fail Rev. 2014; 19: 359-367
        • Kitzman D.W.
        • Brubaker P.
        • Morgan T.
        • Haykowsky M.
        • Hundley G.
        • Kraus W.E.
        • et al.
        Effect of caloric restriction or aerobic exercise training on peak oxygen consumption and quality of life in obese older patients with heart failure with preserved ejection fraction: a randomized clinical trial.
        JAMA. 2016; 315: 36-46
        • National Institutes of Health
        Patient-Reported Outcomes Measurement Information System.
        (Available at:)
        • Cella D.
        • Yount S.
        • Rothrock N.
        • Gershon R.
        • Cook K.
        • Reeve B.
        • et al.
        The Patient-Reported Outcomes Measurement Information System (PROMIS): progress of an NIH roadmap cooperative group during its first two years.
        Med Care. 2007; 45: S3-11
        • Flynn K.E.
        • Dew M.A.
        • Lin L.
        • Fawzy M.
        • Graham F.L.
        • Hahn E.A.
        • et al.
        Reliability and construct validity of PROMIS measures for patients with heart failure who undergo heart transplant.
        Qual Life Res. 2015; 24: 2591-2599
        • Arnold S.V.
        • Spertus J.A.
        • Lei Y.
        • Green P.
        • Kirtane A.J.
        • Kapadia S.
        • et al.
        How to define a poor outcome after transcatheter aortic valve replacement: conceptual framework and empirical observations from the Placement of Aortic Transcatheter Valve (PARTNER) trial.
        Circ Cardiovasc Qual Outcomes. 2013; 6: 591-597