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Clinical Investigation| Volume 23, ISSUE 11, P786-793, November 2017

Barriers to Goals of Care Discussions With Patients Who Have Advanced Heart Failure: Results of a Multicenter Survey of Hospital-Based Cardiology Clinicians

      Highlights

      • Clinicians see patient/family factors as key barriers to goals-of-care discussions.
      • Clinicians should expect these conversations to be difficult for patients/families.
      • Clinicians need more education and tools to enable them to have these conversations.
      • There is opportunity for an interprofessional approach to goals-of-care discussions.

      Abstract

      Background

      Conversations about goals of care in hospital are important to patients who have advanced heart failure (HF).

      Methods

      We conducted a multicenter survey of cardiology nurses, fellows, and cardiologists at 8 Canadian teaching hospitals. The primary outcome was the importance of barriers to goals-of-care discussions in hospital (1 = extremely unimportant; 7 = extremely important). We also elicited perspectives on roles of different practitioners in having these conversations.

      Results

      Questionnaires were returned by 770/1024 (75.2%) eligible clinicians. The most important perceived barriers were: family members' and patients' difficulty in accepting a poor prognosis (mean [SD] score 5.9 [1.1] and 5.7 [1.2], respectively), family members' and patients' lack of understanding about the limitations and harms of life-sustaining treatments (5.8 [1.1] and 5.7 [1.2], respectively), and lack of agreement among family members about goals of care (5.8 [1.2]). Interprofessional team members were viewed as having different but important roles in goals-of-care discussions.

      Conclusions

      Cardiology clinicians perceive family and patient-related factors as the most important barriers to goals-of-care discussions in hospital. Many members of the interprofessional team were viewed as having important roles in addressing goals of care. These findings can inform the design of future interventions to improve communication about goals of care in advanced HF.

      Key Words

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