Journal of Cardiac Failure
Volume 16, Issue 5 , Pages 398-403 , May 2010

Family Caregiving for Patients With Heart Failure: Types of Care Provided and Gender Differences

  • Boyoung Hwang, PhD(c)

      Affiliations

    • School of Nursing, University of California, San Francisco, San Francisco, CA
  • ,
  • Marie Louise Luttik, PhD

      Affiliations

    • Department of Cardiology, University Medical Center Groningen, University of Groningen, Groningen, The Netherlands
    • Corresponding Author InformationReprint requests: Marie Louise Luttik, PhD, University of Groningen, University Medical Center Groningen, Department of Cardiology, PO BOX 30.001, 9700 Groningen, Netherlands. Tel: +31 50 3611594; Fax: +31 50 3614391.
  • ,
  • Kathleen Dracup, DNSc

      Affiliations

    • School of Nursing, University of California, San Francisco, San Francisco, CA
  • ,
  • Tiny Jaarsma, PhD

      Affiliations

    • Department of Cardiology, University Medical Center Groningen, University of Groningen, Groningen, The Netherlands

Received 18 April 2009 ,Revised 24 December 2009 ,Accepted 30 December 2009.

References 

  1. American Heart Association. Heart disease and stroke statistics-2009 update. Dallas, TX; 2009.
  2. Dickstein K, Cohen-Solal A, Filippatos G, McMurray JJ, Ponikowski P, Poole-Wilson PA, et al. ESC guidelines for the diagnosis and treatment of acute and chronic heart failure 2008: the task force for the diagnosis and treatment of acute and chronic heart failure 2008 of the European Society of Cardiology. Developed in collaboration with the Heart Failure Association of the ESC (HFA) and endorsed by the European Society of Intensive Care Medicine (ESICM). Eur J Heart Fail. 2008;10:933–989
  3. Gure TR, Kabeto MU, Blaum CS, Langa KM. Degree of disability and patterns of caregiving among older Americans with congestive heart failure. J Gen Intern Med. 2008;23:70–76
  4. Luttik ML, Jaarsma T, Veeger N, van Veldhuisen DJ. Marital status, quality of life, and clinical outcome in patients with heart failure. Heart Lung. 2006;35:3–8
  5. Luttik ML, Jaarsma T, Moser D, Sanderman R, van Veldhuisen DJ. The importance and impact of social support on outcomes in patients with heart failure: an overview of the literature. J Cardiovasc Nurs. 2005;20:162–169
  6. Molloy GJ, Johnston DW, Witham MD. Family caregiving and congestive heart failure. Review and analysis. Eur J Heart Fail. 2005;7:592–603
  7. Karmilovich SE. Burden and stress associated with spousal caregiving for individuals with heart failure. Prog Cardiovasc Nurs. 1994;9:33–38
  8. Luttik ML, Jaarsma T, Veeger N, Tijssen J, Sanderman R, van Veldhuisen DJ. Caregiver burden in partners of heart failure patients: limited influence of disease severity. Eur J Heart Fail. 2007;9:695–701
  9. Bakas T, Pressler SJ, Johnson EA, Nauser JA, Shaneyfelt T. Family caregiving in heart failure. Nurs Res. 2006;55:180–188
  10. Walker AJ, Pratt CC, Eddy L. Informal caregiving to aging family members: a critical review. Fam Relat. 1995;44:402–411
  11. Hagedoorn M, Sanderman R, Buunk BP, Wobbes T. Failing in spousal caregiving: the ‘identity-relevant stress’ hypothesis to explain sex differences in caregiver distress. Br J Health Psychol. 2002;7:481–494
  12. Pinquart M, Sorensen S. Gender differences in caregiver stressors, social resources, and health: An updated meta-analysis. J Gerontol B Psychol Sci Soc Sci. 2006;61:P33–P45
  13. Jaarsma T, Van Der Wal MH, Hogenhuis J, Lesman I, Luttik ML, Veeger NJ, et al. Design and methodology of the COACH study: a multicenter randomised Coordinating study evaluating Outcomes of Advising and Counselling in Heart failure. Eur J Heart Fail. 2004;6:227–233
  14. Jaarsma T, van der Wal MH, Lesman-Leegte I, Luttik ML, Hogenhuis J, Veeger NJ, et al. Effect of moderate or intensive disease management program on outcome in patients with heart failure: Coordinating Study Evaluating Outcomes of Advising and Counseling in Heart Failure (COACH). Arch Intern Med. 2008;168:316–324
  15. Luttik ML, Jaarsma T, Tijssen JG, van Veldhuisen DJ, Sanderman R. The objective burden in partners of heart failure patients: development and initial validation of the Dutch Objective Burden Inventory. Eur J Cardiovasc Nurs. 2008;7:3–9
  16. In:  Dolgin M editors. Nomenclature and criteria for diagnosis of diseases of the heart and great vessels. 9th ed. Boston, MA: Little Brown & Co; 1994;
  17. Bennett JA, Riegel B, Bittner V, Nichols J. Validity and reliability of the NYHA classes for measuring research outcomes in patients with cardiac disease. Heart Lung. 2002;31:262–270
  18. VanderZee KI, Sanderman R, Heyink J. A comparison of two multidimensional measures of health status: the Nottingham Health Profile and the RAND 36-Item Health Survey 1.0. Qual Life Res. 1996;5:165–174
  19. Nortvedt MW, Riise T, Myhr KM, Nyland HI. Performance of the SF-36, SF-12, and RAND-36 summary scales in a multiple sclerosis population. Med Care. 2000;38:1022–1028
  20. Donelan K, Hill CA, Hoffman C, Scoles K, Feldman PH, Levine C, et al. Challenged to care: informal caregivers in a changing health system. Health Aff (Millwood). 2002;21:222–231
  21. Boyd KJ, Murray SA, Kendall M, Worth A, Frederick Benton T, Clausen H. Living with advanced heart failure: a prospective, community based study of patients and their carers. Eur J Heart Fail. 2004;6:585–591
  22. Clark AM, Reid ME, Morrison CE, Capewell S, Murdoch DL, McMurray JJ. The complex nature of informal care in home-based heart failure management. J Adv Nurs. 2008;61:373–383
  23. Aldred H, Gott M, Gariballa S. Advanced heart failure: impact on older patients and informal carers. J Adv Nurs. 2005;49:116–124
  24. Luttik ML, Blaauwbroek A, Dijker A, Jaarsma T. Living with heart failure: partner perspectives. J Cardiovasc Nurs. 2007;22:131–137
  25. Barnes S, Gott M, Payne S, Parker C, Seamark D, Gariballa S, et al. Characteristics and views of family carers of older people with heart failure. Int J Palliat Nurs. 2006;12:380–389
  26. Lesman-Leegte I, Jaarsma T, Sanderman R, Linssen G, van Veldhuisen DJ. Depressive symptoms are prominent among elderly hospitalized heart failure patients. Eur J Heart Fail. 2006;8:634–640
  27. Konstam V, Moser DK, De Jong MJ. Depression and anxiety in heart failure. J Card Fail. 2005;11:455–463
  28. Stevens D, Kiger G, Riley PJ. Working hard and hardly working: domestic labor and marital satisfaction among dual-earner couples. J Marriage Fam. 2001;63:514–526
  29. Stewart S. Recognising the “other half” of the heart failure equation: are we doing enough for family caregivers?. Eur J Heart Fail. 2005;7:590–591

 Supported by the Netherlands Heart Foundation (grant number NHF-2000Z003)

PII: S1071-9164(09)01239-1

doi: 10.1016/j.cardfail.2009.12.019

Journal of Cardiac Failure
Volume 16, Issue 5 , Pages 398-403 , May 2010